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Lupus and Hearing Loss

By October 30, 2006

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JLundquist writes on the forum:
This may have already been mentioned, but if not, I hope this information can help others. I have a form of Lupus (C.R.E.S.T.), and one of the first recognized symptoms was sudden hearing loss. Despite taking anti-inflammatories and immunosuppressive drugs for many years, my disease has never gone into "remission" and I now am about 80% deaf. I do know that having autoimmune disease related hearing loss does not necessarily mean you will develop a full-blown autoimmune disease.

November 4, 2006 at 1:49 pm
(1) Banjos1 says:

Lest people who are starting to lose their hearing at a rather fast pace worry unnecessarily, I had this experience starting at 37. I’m now 60 and have not developed any type of autoimmune disease.

My sympathy as it is bad enough to be hearing impaired without coping with an autoimmune disease, too.

November 4, 2006 at 7:43 pm
(2) barbara says:

Try nutrition. A good website to go to is http://www.aztechs-lsp.com. The person who runs the site has lupus too. No hearing loss, but other problems associated with the lupus.

November 5, 2006 at 9:22 am
(3) Joan says:

I have had sudden hearing loss , how can I find out more about this crest, even though extensive testing has been done I have never been given a reason for this sudden hearing loss. It was never suggested to test for lupus. I have fibrymyalgis and figure it was assosiated with that.

November 14, 2007 at 3:57 pm
(4) Hallie says:

C.R.E.S.T is not a form of lupus. It is a form of scleroderma.

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