Sensory Overload Possible?
Friday November 3, 2006
An About visitor wrote:
I have a type of Systemic Lupus (C.R.E.S.T.) which first symptoms were manifested through sudden hearing loss. I've done tons of chemo & steroids, and am about 80% deaf now. I wear 2 hearing aids, and certainly must "upgrade" periodically. One thing I have not seen mentioned in reference to aids and implants is this.......there are times that I get absolutely worn out from trying to understand, and literally must shut down my aids because of this. My audiologist calls this sensory overload. Do other aid wearers experience this? Also, is this a complaint heard from C.I. wearers as well??? I am concerned that my very active disease may cause a "rejection" of an implant. Maybe it will help my hearing, but cause a "rebound flare", and I do get brain inflammation, so..... Is this possible? Frankly, after 21 years of treatments, I'm letting my hearing "go", and am trying to do now as few drugs as possible.
I have a type of Systemic Lupus (C.R.E.S.T.) which first symptoms were manifested through sudden hearing loss. I've done tons of chemo & steroids, and am about 80% deaf now. I wear 2 hearing aids, and certainly must "upgrade" periodically. One thing I have not seen mentioned in reference to aids and implants is this.......there are times that I get absolutely worn out from trying to understand, and literally must shut down my aids because of this. My audiologist calls this sensory overload. Do other aid wearers experience this? Also, is this a complaint heard from C.I. wearers as well??? I am concerned that my very active disease may cause a "rejection" of an implant. Maybe it will help my hearing, but cause a "rebound flare", and I do get brain inflammation, so..... Is this possible? Frankly, after 21 years of treatments, I'm letting my hearing "go", and am trying to do now as few drugs as possible.
***
Have you ever experienced sensory overload that forced you to turn off your hearing aid or cochlear implant? Does autoimmune disease cause implants to be rejected?
Comments
I HAVE BEEN DEAF SINCE BIRTH AND WORN HEARING AIDES SINCE THE AGE OF 2. I GOT LUPUS WHEN I WAS 21 YEARS OLD. I DONT KNOW IF LUPUS AND DEAFNESS RELATED OR NOT?? I TOO HAVE GONE THRU LOTS OF CHEMO AS WELL…AS FOR WEARING HEARING AIDES..I LOVE THEM BUT AT TIMES IT IS SO GRATIFYING TO BE ABLE TO JUST SIMPLY TURN THEM OFF AND GO INTO THE WONDERFUL WORLD OF COMPLETE SILENCE!
I also have sudden hearing loss due to autoimmune disorder, and have experienced the same symptoms of fatigue and overload. It has been 2 years since I awoke unable to hear, and my deafness has progressed to total loss in the right, and 70% on the left. I have found that when I am fatigued or stressed (physically or psychologically), my hearing loss increases. If I turn my hearing aid off and “rest”, my hearing improves back to my baseline. Have you found that to be true? My neurotologist and ENT docs think my hearing will continue to deteriorate, and that this rest is essential preserving or delaying this process, but I’m finding that insurance companies / social security are not as knowledgable regarding hearing loss induced fatigue. Has anyone else experienced this?